|Posted by Lorraine Barnes on November 6, 2014 at 8:20 AM|
Lack of updates this past couple of weeks courtesy of Cystic Fibrosis sticking it's ugly nose in - youngest son was admitted to Hospital mid-way through a routine 3 monthly course of IV antibiotics as his chest was very cackly and lung function had dropped to 72% from an average of 86 - 89% in a few months. He also had an NG Tube inserted to tube feed him overnight for 6 days to try and get some weight on him as he hasn't gained any weight since May 2013 - this did not work as it put him off eating normally due to the pain in his nose/throat, so he ended up loosing more weight! He is to be re-admitted in January 2015 to have a Gastrostomy for long term weight gain support.
Trying to do a Calendar on a limited time scale is proving challenging, but possible!! As part of my desire to raise £50,000 for the Cystic Fibrosis Trust between now and my 50th Birthday in 19 months I have to do a few BIG fundraisers in order to achieve that target and I know from past experience that the Calendar's created by me do well and raise a good few thousand pounds, which will go a long way towards me achieving my goal. So the 2015 Cystic Fibrosis Superheroes Calendar is GO GO GO!!
I currently have 76 pictures, the majority of which are babies and children who have Cystic Fibrosis, and these have now been sent to the Designer/Printer to get underway with producing the Calendar. Pleased to say that my good friend Nick Callaghan from Hills Prospect Ltd in London will be Sponsoring the Calendar again so that 100% of the proceeds can be donated to the Cystic Fibrosis Trust.
The Calendars created by me since 2006 - 7 in total, 8 with this new one, have raised nearly £40,000 in total - always a well received and well supported fundraiser - ideal Christmas presents - ideal for raising awareness of the dreadful genetic condition which is Cystic Fibrosis - and it also shows impressionable young children that they are not alone - there are other children out there like them who do daily treatments, take daily medications, have intrusive procedures like bronchoscopys, endoscopys, Portacath insertion, Gastrostomys, IV antibiotics every 3 months and so on.
I have called on the support once more of another good friend, Mike, who has Cystic Fibrosis and was 60 years old last month - a good age for a person with CF, who designed my very first Calendar and always updated my Order Form, Compliment Slips and Poster. Once the final cover image has been approved by me I'll get the poster added to my website for people to download and display in CF Units. When I have a Calendar to weigh I'll get P & P details added to the Order Form which can be downloaded via this website.
A limited amount of Calendars will also be listed on ebay for those people I can't reach affected by Cystic Fibrosis through Twitter and Facebook links.
I hope this Calendar will be well supported and target to raise = £5000 - £6000 ..... WATCH THIS SPACE FOR MORE INFORMATION!!